Understanding Hypermobility Syndrome
Many people are quick to judge children as lazy, but for some, like my own, but children can have invisible illnesses. An underlying condition called hypermobility syndrome, is just one example. This condition grants individuals a wider range of joint movement, which can be advantageous for some, like athletes or dancers. However, for others, it can lead to significant pain and difficulties.
The Challenges of Hypermobility
For my children, their joints work overtime just to maintain basic activities. A simple trip to the park becomes a risky endeavour as their knees and ankles are prone to slipping, causing falls and injuries. Tasks that most take for granted, like standing upright or walking, become monumental feats for them.
The Invisible Struggle
It’s crucial for people to understand that not all disabilities are visible. Just because a child appears healthy doesn’t mean they aren’t grappling with pain and challenges. When you see a child occupying a spare chair at a museum or sitting in a disabled spot on a bus, consider that they may genuinely need that accommodation.
The Stigma of Invisible Disabilities
As a parent, it’s disheartening to face judgment and whispers from others, especially when I need to use a wheelchair for my child or secure a disabled seat. These covert glances and comments from older generations only add to the frustration of navigating everyday life with a child with invisible disabilities.
The Unpredictability of Daily Life
Living with hypermobility means never knowing when a good day might turn sour. Plans are always subject to change, as pain and discomfort can flare up unexpectedly. Painkillers provide little relief, and the unpredictability of symptoms adds another layer of complexity to daily life.
Promoting Understanding and Empathy
It’s essential for society to move beyond rigid notions of disability confined to wheelchairs. Invisible illnesses in children and disabilities require more understanding and compassion. Before passing judgment, it’s crucial to pause and consider the challenges that individuals with invisible disabilities face. Criticism, whether vocalised or internalised, only exacerbates the stigma surrounding invisible disabilities.
Hypermobility syndrome is just one example of an invisible disability that affects children and their families. By fostering greater awareness, empathy, and understanding, we can create a more inclusive society where all individuals, regardless of their visible abilities, feel seen, heard, and supported.
0 Comments